Tuesday, 14 May 2013



Ah, yet another long day has just been had by Constanze in the Royal Hallamshire Hospital. I meant to take a photo of me doing something exciting but I completely forgot so here I am on my way out near various departments I have nothing to do with. Woohoo! Also I am aware that my skirt is very wonky (it's one of those ones that's short at the front and long at the back except when I wear them they end up doing several little dances and shuffling around and ending up making me look like I can't dress myself. Which is actually fair because I can't) and hasn't been ironed but I'm a rebel bitch so I don't even care man. Also there's a hole in my tights. SEXY 50'S HOMELESS STANZE. And I wonder why people look at me funny!

But anyway, I'm tired and can't be bothered with sentences and whatnot (can I ever? I always say that. I never am can I green eggs and ham I am) so here are some things I learned today as well as some exciting tales and highlights and monsters and dragons and banana bread in a series of bullet points and schizzwazzle and aprons. I think I'm drinking radioactivity. Never drink anything brighter than your hair!

*My chimerism has stayed at 98% and they still can't detect any cancery shit in my blood. AWESOME. They are very pleased with my last set of blood results, I made some of almost everything that blood is supposed to have. *pats bone marrow lovingly*

*I need to have a fuckload of injections and vaccinations such as MMR and whatnot. Again. This should have been done about two years ago apparently but they can't do them while you're still showing any signs of graft-versus-host disease which I'm really good at so they got postponed. And then a bit forgotten about. No measles for me!

*EVERYONE was at hospital today, I swear it was like a blood disorder disco. Caught up with one of my fave fellow patients, he's this older guy and he's EPIC. He's basically me in about 50 years. But about a million times cooler. We once got told off for sitting in the teenage room together, more examples of my hardcore lifestyle. I swear I'm going off the rails. Drugs, incorrect seating, skiving off work to hang out at hospital raves, it's all a downward spiral into oblivion...

*They're asking the German bone marrow donation board if I can know the identity of my donor yet. Too excited for words.

*There's this stupid new way of getting drugs that I really hate and it makes me quite grumpy because it was clearly thought out by an idiot and grumble mumble moan. Basically they've opened up a Boots pharmacy next door to the hospital pharmacy and have been making some people go there to get their medication. The first thing that annoys me is that the queue is really long and there's no proper seating, you just queue in a busy shop and it's chaos and standing up for 15 minutes is no mean feat when you're really poorly. I also don't like having my medical information yelled out across a shop, before there was a little private area where you could actually talk to the pharmacist instead of being ushered on by someone who seems to have no idea what medication actually is. Secondly they keep all the prescriptions in a stupid place where it's really easy to steal them, I mean, my tablets cost thousands of pounds and any old sod could swipe them. It's just a complete cock up. Ergh. I am going to eat another Party Ring to express my disgust.

*It's a mystery as to why I never got an appointment for the late effects clinic. The new doctor lady (who was very nice) says she'll sort it out so if it gets forgotten again I must remember to blame her. But she did seem most useful and had all of her lights on so I am quietly optimistic!

*The blood taking zone place thingy was surprisingly quiet. I mean, I was still 50th in the queue but it seemed to move quite fast which was a lovely luxury. I barely had time to finish my chocomilk!

*The calcium supplement debate rages on. I think basically the decision is up to me. My calcium levels are at the very bottom of just about normal and I eat a lot of cheese so who knows? Not me. Do I want to keep taking them? They are the tasty chewy tablets. They're the only chewy tablets I have. Waaaaa. I feel like I shouldn't make serious medical decisions based on whether the tablets are chewable or not... But I am and I will. More eating can never be bad!

*Got some delicious drugs. THUMBS UP KIDS.



I think that may be enough fun for one day! Custard creams and a bath for me. And before you ask, YES TOGETHER I DO EVERYTHING IN THE BATH IT'S MY OFFICE. Mental, mental as can beeeeeee :)

Constancancerze xXxXx

1 comment:

  1. I've been reading your blog for a long time but almost never comment. But I'm so happy that your blood work came out great! Best of luck.

    ReplyDelete

Aha! You have a thought!